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Alzheimer’s Funding, Research & Resources

by Nancy Wurtzel

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Alzheimer’s Research Funding

Government structure can be confusing and it is difficult to figure out which agency is actually providing monies for Alzheimer’s research.  Hopefully these descriptions and links will help decipher the layers.

National Institutes of Health (NIH) — The NIH is a large, umbrella organization within the U.S. Department of Health and Human Services.  From its website, “NIH is the nation’s medical research agency—supporting scientific studies that turn discovery into health.”  The NIH funds research for many different diseases and medical conditions, including Alzheimer’s disease.  Visit their link to learn more about the NIH.

Alzheimer's research-dementia-aging-elderly-cognitive function-the brainNational Institute on Aging (NIA) — Formed in 1974, the NIA is one of 27 institutes and centers that make up the National Institutes of Health (NIH).  To say it another way, the NIA is a part of the NIH.  Alzheimer’s research monies are allocated first to the NIH and then through the NIA.

NIA Alzheimer’s Funding –Find out what, where and how the National Institute on Aging (NIA) is assigning funding for Alzheimer’s research.  At this link, you will learn more about specific programs and how Alzheimer’s research monies are being allocated.

National Alzheimer’s Plan

National Alzheimer’s Plan — In 2011, the federal government wrote a national plan to address Alzheimer’s disease.  It features details about The National Alzheimer’s Project Act, including progress in research, benchmarks, goals, caregiving accountability.  The plan is updated annually.  It is 13 pages of single-spaced type, but worth the review.

Coalition Against Major Diseases (CAMD) — Ever wonder if Alzheimer’s researchers are sharing information and collaborating?  The good news is that some recent shifts have pushed for more collaboration.  CAMD provides the platform for such communication.

The Alzheimer’s Association

Alzheimer’s Association — Chicago-based nonprofit organization providing support, education, advocacy and research monies.  It is the undisputed source for all-things Alzheimer’s.  Do you need assistance and guidance?  Would you like to volunteer?  Go to their website and access their 24/7 helpline.

Wipe Out Alzheimer’s — Maria Shriver continues to be an outstanding Alzheimer’s champion and her latest effort/challenge is awesome.  Check it out and tell your friends.

Alzheimer’s Impact Movement (AIM) — The nonpartisan, political PAC of the Alzheimer’s Association.

Become Part of Alzheimer’s Research

alzheimer's research-dementia researchersTrial Match — Alzheimer’s Association destination to match people with current and future research trials.

National Institute on Aging — Details on what research is happening at the NIA and how you can participate.

Alzheimer’s Prevention Initiative  — This nonprofit has partnered with 12 other organizations to locate research participants and match them with the right study. Go to the website to join the registry.

Centerwatch — Learn about the latest research detailed by state.

Alzheimer’s Forum — Find out where to donate your brain or brain tissue.  You must choose a country and then scroll down to see results.

Alzheimer’s Books & Films

Still Alice by Lisa Genova — Powerful, page-turning book made into an award-winning movie.  My suggestion is to first read the book and then see the movie.

Alive Inside — This documentary about music therapy blew me away.  I wish I would have tried this with my mom when I was caregiving for her.  The approach is not rocket-science, yet it is more specific than just popping in a cd.  It’s really all about picking the right music and using good headphones.  Amazing results.

The Sandwich Generation — I saw this documentary some years back, and really thought it captured caregiving challenges.  Take time to view it and share the link with friends.

The Alzheimer’s Project HBO — If you think HBO is just about movies and off-beat series, then think again.  This series is a must-see for those who are in the early diagnosis stage and those who are doing the caregiving.  Filmed in 2009, it is still relevant today, with moving and insightful stories told beautifully.

What is Alzheimer’s disease? — Watch this four-minute, animated video produced by TED-Ed.  It details the basics of Alzheimer’s disease.  Very helpful and so short you can watch this video over-and-over to nail down the details.

 

*Photo Purchased From Dreamstime

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